Last updated: May 2020
Here you will find a summary of evidence and research relating to end-of-life care and the role of speech and language therapy.
Visit the RCSLT Research Centre for information and resources to support your evidence-based practice, ways to enhance your continuing professional development (CPD), information about clinical academic careers, resources to help you get involved in research, and much more.
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Research papers, articles and books
Alsolamy S. Islamic views on artificial nutrition and hydration in terminally ill patients. Bioethics 2012; 28(2), 96–99.
Barriguinha C, Mourão MT, Martins JC. The speech therapist in palliative care: perspective of patients, families and/or informal caregivers and professional team involved. Revista Portuguesa de Terapia da Fala 2015; 4,15–20.
Bogaardt H, Veerbeek L, Kelly K, Van der Heide A, Van Zuylen L, Speyer R. Swallowing problems at the end of the palliative phase: incidence and severity in 164 unsedated patients. Dysphagia 2014; 30(2), 145–151.
Boundy EO, Dastjerdi R, Spiegelman D, Fawzi WW, Missmer SA, Lieberman E, Kajeepeta S, Wall S, Chan GJ. Kangaroo mother care and neonatal outcomes: a meta-analysis. Pediatrics [online] 2016; 137(1), e20152238
Eckman S, Roe J. Speech and language therapists in palliative care: what do we have to offer? International Journal of Palliative Nursing, 2005; 11(4), 179–181.
Fraser L, Miller M, Hain R, Norman P, Aldridge J, McKinney P, Parslow R. Rising national prevalence of life-limiting conditions in children in England – White Rose Research Online. Whiterose.ac.uk. [online] 2012
Gardiner C, Harrison M, Ryan T, Jones, A. Provision of palliative and end-of-life care in stroke units: a qualitative study. Palliative Medicine 2013; 27(9), 855–860.
Griffith R. Withdrawing or withholding life-sustaining clinically-assisted nutrition and hydration. British Journal of Community Nursing 2017; 22(12), 615–617.
Hawksley R, Ludlow F, Buttimer H, Bloch S. Communication disorders in palliative care: investigating the views, attitudes and beliefs of speech and language therapists. International Journal of Palliative Nursing, 2017; 23(11), 543–551.
Humel P, Cronin J. Home care of the high risk infant. Advances in Neonatal Care 2004; 4(6), pp.354–364.
Kambarami RA. Kangaroo Care Method (Mother-Baby Skin to Skin Care): a guide for health workers. Harare: Uz, Dept. Of Paediatrics And Child Health, 1996.
Kelly K, Cumming S, Corry A, Gilsenan K, Tamone C, Vella K, Bogaardt H. The role of speech-language pathologists in palliative care: where are we now? A review of the literature. Progress in Palliative Care 2016; 24(6), 315–323.
Kenner C, Mcgrath JM. National Association of Neonatal Nurses. Developmental Care of Newborns & Infants: a guide for health professionals. Glenview, Il: National Association Of Neonatal Nurses, 2010.
Krikheli L, Mathisen BA, Carey LB. Speech–language pathology in paediatric palliative care: A scoping review of role and practice. International Journal of Speech-Language Pathology, 2017; 20(5), 541–553.
Levy A, Dominguez-Gasson L, Brown E, Frederick C. Managing dysphagia in the adult approaching end of life. ASHA Leader 2004; 9(13),1.
Mason J, Scior K. (). ‘Diagnostic overshadowing’ amongst clinicians working with people with intellectual disabilities in the UK. Journal of Applied Research in Intellectual Disabilities [online] 2004; 17(2), 85–90
Mathisen B, Yates P, Crofts P. Palliative care curriculum for speech-language pathology students. International Journal of Language & Communication Disorders 2011; 46(3), 273–285.
Moloney J, Walshe M. Managing and supporting quality‐of‐life issues in dysphagia: a survey of clinical practice patterns and perspectives in the UK, Ireland and South Africa. International Journal of Language & Communication Disorders 2018; 54(1), 41–49.
Murphy J. Communication strategies of people with ALS and their partners. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders 2004a; 5(2),121–126.
Murphy J. ‘I prefer contact this close’: perceptions of AAC by people with motor neurone disease and their communication partners. Augmentative and Alternative Communication 2004b; 20(4), 259–271.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ 2005; 330(7498),1007–1011.
Nancarrow SA, Booth A, Ariss S, Smith T, Enderby P, Roots A. Ten principles of good interdisciplinary team work. Human Resources for Health 2013; 11(1).
Newman K. Speech and language therapy techniques in end-of-life care. End of Life Journal 2009; 3(1), 8–14.
O’Reilly AC, Walshe M. Perspectives on the role of the speech and language therapist in palliative care: an international survey. Palliative Medicine 2015; 29(8), 756–761.
Parravicini E. Neonatal palliative care. Current Opinion in Pediatrics 2017; 29(2), 135–140.
Pascoe A, Breen LJ, Cocks N. What is needed to prepare speech pathologists to work in adult palliative care? International Journal of Language & Communication Disorders 2018; 53(3), 542–549.
Pollens RD. Integrating speech-language pathology services in palliative end-of-life care. Topics in Language Disorders 2018; 32(2),137–148.
Robinson L, Dickinson C, Bamford C, Clark A, Hughes J, Exley C. A qualitative study: professionals’ experiences of advance care planning in dementia and palliative care, ‘a good idea in theory but ….’ Palliative Medicine 2012; 27(5), 401–408.
Saunders C, Baines M. Living with Dying: the Management of Terminal Disease. Oxford: Oxford University Press, 1989.
Sinuff T, Dodek P, You JJ, Barwich D, Tayler C, Downar J, Hartwick M, Frank C, Stelfox HT, Heyland DK. Improving end-of-life communication and decision-making: the development of a conceptual framework and quality indicators. Journal of Pain and Symptom Management 2015; 49(6), 070–1080.
Soileau K, Elster N. The hospice patient’s right to oral care. Journal of Palliative Care 2018; 33(2), 65–69.
Tuffrey-Wijne I, Hogg J, Curfs L. End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities, 2007; 20(4), 331–344.