This page provides information and resources to help you to continually improve your skills and expand your knowledge in end-of-life-care.
See the following Learning pages for further information and resources:
Please note: the resources on this page are provided for informational purposes only. No endorsement is expressed or implied unless otherwise stated, and while we make every effort to ensure this page is up-to-date and relevant, we cannot take responsibility for pages maintained by external providers.
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Knowledge and skills
Research papers, articles and books
Alsolamy S. Islamic views on artificial nutrition and hydration in terminally ill patients. Bioethics 2012; 28(2), 96–99.
Barriguinha C, Mourão MT, Martins JC. The speech therapist in palliative care: perspective of patients, families and/or informal caregivers and professional team involved. Revista Portuguesa de Terapia da Fala 2015; 04, 15–20.
Bogaardt H, Veerbeek L, Kelly K, Van der Heide A, Van Zuylen L, Speyer R. Swallowing problems at the end of the palliative phase: incidence and severity in 164 unsedated patients. Dysphagia 2014; 30(2), 145–151.
Boundy EO, Dastjerdi R, Spiegelman D, Fawzi WW, Missmer SA, Lieberman E, Kajeepeta S, Wall S, Chan GJ. Kangaroo mother care and neonatal outcomes: a meta-analysis. Pediatrics [online] 2016; 137(1), e20152238
Eckman S, Roe J. Speech and language therapists in palliative care: what do we have to offer? International Journal of Palliative Nursing 2005; 11(4), 179–181.
Fraser L, Miller M, Hain R, Norman P, Aldridge J, McKinney P, Parslow R. Rising National Prevalence of Life-Limiting Conditions in Children in England – White Rose Research Online. Whiterose.ac.uk. [online] 201
Gardiner C, Harrison M, Ryan T, Jones A. Provision of palliative and end-of-life care in stroke units: a qualitative study. Palliative Medicine 2013; 27(9), 855–860.
Griffith R. Withdrawing or withholding life-sustaining clinically-assisted nutrition and hydration. British Journal of Community Nursing 2017; 22(12), 615–617.
Hawksley R, Ludlow F, Buttimer H, Bloch S. Communication disorders in palliative care: investigating the views, attitudes and beliefs of speech and language therapists. International Journal of Palliative Nursing 2017; 23(11), 543–551.
Hummel P, Cronin J. Home care of the high-risk infant. Advances in Neonatal Care, 2004; 4(6), 354–364.
Kambarami RA. Kangaroo Care Method (Mother-Baby Skin to Skin Care) : a guide for health workers. Harare: Uz, Dept. Of Paediatrics And Child Health, 1996.
Kelly K, Cumming S, Corry A, Gilsenan K, Tamone C, Vella K, Bogaardt H. The role of speech-language pathologists in palliative care: where are we now? A review of the literature. Progress in Palliative Care 2016; 24(6), pp.315–323.
Kenner C, Mcgrath JM, National Association of Neonatal Nurses. Developmental Care of Newborns & Infants: a Guide for Health Professionals. Glenview, Il: National Association of Neonatal Nurses, 2010.
Krikheli L, Mathisen BA, Carey LB. Speech–language pathology in paediatric palliative care: a scoping review of role and practice. International Journal of Speech-Language Pathology 2017; 20(5), 541–553.
Levy A, Dominguez-Gasson L, Brown E, Frederick C. (). Managing dysphagia in the adult approaching end of life. ASHA Leader, 2004; 9(13), 1.
Mason J, Scior K. ‘Diagnostic overshadowing’ amongst clinicians working with people with intellectual disabilities in the UK. Journal of Applied Research in Intellectual Disabilities [online] 2004; 17(2), pp.85–90
Mathisen B, Yates P, Crofts P. Palliative care curriculum for speech-language pathology students. International Journal of Language & Communication Disorders 2011; 46(3), 273–285.
Moloney J, Walshe M. Managing and supporting quality‐of‐life issues in dysphagia: a survey of clinical practice patterns and perspectives in the UK, Ireland and South Africa. International Journal of Language & Communication Disorders 2018; 54(1), 41–49.
Murphy J. Communication strategies of people with ALS and their partners. Amyotrophic Lateral Sclerosis and Other Motor Neuron Disorders 2004a; 5(2), 121–126.
Murphy J. ‘I prefer contact this close’: perceptions of AAC by people with motor neurone disease and their communication partners. Augmentative and Alternative Communication 2004b; 20(4), 259–271.
Murray SA, Kendall M, Boyd K, Sheikh A. Illness trajectories and palliative care. BMJ 2005; 330(7498), 1007–1011.
Nancarrow SA, Booth A, Ariss S, Smith T, Enderby P, Roots A. (). Ten principles of good interdisciplinary team work. Human Resources for Health 2013; 11(1).
Newman K. Speech and language therapy techniques in end-of-life care. End of Life Journal 2009; 3(1), 8–14.
O’Reilly AC, Walshe M. Perspectives on the role of the speech and language therapist in palliative care: an international survey. Palliative Medicine 2015; 29(8), 756–761.
Parravicini E. Neonatal palliative care. Current Opinion in Pediatrics 2017; 29(2), 135–140.
Pascoe A, Breen LJ, Cocks N. What is needed to prepare speech pathologists to work in adult palliative care? International Journal of Language & Communication Disorders 2018; 53(3), 542–549.
Pollens RD. Integrating speech-language pathology services in palliative end-of-life care. Topics in Language Disorders 2012; 32(2), 137–148.
Robinson L, Dickinson C, Bamford C, Clark A, Hughes J, Exley C.. A qualitative study: professionals’ experiences of advance care planning in dementia and palliative care, ‘a good idea in theory but ….’ Palliative Medicine 2012; 27(5), 401–408.
Saunders C, Baines M. Living with dying: the management of terminal disease. Oxford: Oxford University Press, 1989
Sinuff T, Dodek P, You JJ, Barwich D, Tayler C, Downar J, Hartwick M, Frank C, Stelfox HT, Heyland DK. Improving end-of-life communication and decision making: the development of a conceptual framework and quality indicators. Journal of Pain and Symptom Management 2015; 49(6), 1070–1080.
Soileau K and Elster N. The hospice patient’s right to oral care. Journal of Palliative Care 2018; 33(2), pp.65–69.
Taylor H. Legal and ethical issues in end of life care: implications for primary health care. Primary Health Care 2015; 25(5), 34–41.
Toner MA, Shadden BB. End of life. Topics in Language Disorders 2012; 32(2), 111–118.
Tuffrey-Wijne I, Hogg J, Curfs L. End-of-life and palliative care for people with intellectual disabilities who have cancer or other life-limiting illness: a review of the literature and available resources. Journal of Applied Research in Intellectual Disabilities 2007; 20(4), 331–344.
Generic end-of-life care resources
Specific end-of-life care resources
RCSLT mouth care guidance – best practice guidelines for SLTs delivering mouth care and collection of useful resources
Generic end-of-life care guidance
RCN. RCN End of Life Care [online], 2015
Clinical support – identification of dying and toolkit
Clinical support – clinical assessment
Rockwood K. A global clinical measure of fitness and frailty in elderly people. Canadian Medical Association Journal 2005; 173(5), 489–495.
Clinical support – person-centred care
Connolly M, Perryman J, McKenna Y, Orford J, Thomson L, Shuttleworth J, Cocksedge S. SAGE & THYMETM: A model for training health and social care professionals in patient-focused support. Patient Education and Counseling 2010; 79(1), pp.87–93.
Clinical support – care pathways
Specific to learning disability
Disability Distress Assessment Tool [online], 2008
Ldpcproject.co.uk. Learning Disabilities and Palliative Care Project – Palliative Care Pathway [online], 2014
Advance care planning
Hine P, Singh J. My Future and End of Life Care Plan [online], 2016